Posts Tagged ‘disability’

A disgruntled wanna be customer

April 6, 2010

To Whom It May Concern at Spirit Airlines:

While I recognize that it takes money, patience, and time to run an airline, as a frequent traveler, I must admit that I am truly disgusted by your lack of compassion for the disabled community in your move to charge for overhead bin space.

I frequently travel. I have been on crutches for close to 20 years, and if I truly had to pay $45 every time I went to Tampa, which is often, I would be bankrupt. It’s a ridiculous expense, more so than the charge for baggage. I know I know, next thing you’re going to tell me is that it’s to prevent people from getting around paying the baggage fair, well I apologize for not being able to walk without an assisting device. I will let someone know the next time I’m born with this condition to ensure that it won’t happen again.

It’s deplorable, and disgusting, and thankfully I will never get on your airline.

Sincerely,

A disgruntled physically challenged wanna be Spirit Airlines customer

Something’s going to happen ~ Chances are 50/50 they’re going to be pretty good…

May 4, 2009

“and I’m willing to take that risk.”

I’ve got to tell you, for someone that has been dealing with a disorder for longer than the other part of her life, I saw Michael J Fox on Actor’s Studio tonight.

He brought me to tears. He deals with the pain with a seemingly relative ease. States that it’s terribly painful, but moves on. Moves up, gets past it. There is something so wildly refreshing from that. I have always felt to a certain extent that when people would tell me, “Oh you’re so strong.” I would like laugh it off. I guess now I need to start saying thank you. It was one of those things that you just do.
What are you going to do?
With any disorder that you have to deal with, it’s one of those things…it’s hard to say…harder even to explain.
No one tells you “Oh you’re going to die.” No one tells you how or what to do next. You go to school, and people try and extract you out and holler at you, and all you can do..honestly, is just go on. Fight.Fight really really hard. Everything becomes very aggressive and it becomes a “Screw you” or get screwed type of persona. I think to a certain extent that’s why I become so aggressive towards things.

I am firmly convinced that is why I’m with my bf to this day. I was aggressive towards how I felt for him for one reason and one reason only.

I knew in my heart that if I didn’t tell him how I felt I would never forgive myself. I would eternally hurt in my heart if I didn’t let him know that my heart yearned for him.

It’ll be 5 years on Saturday.

My heart still hurts every time he parts from my company.

A lesson in good business practices…

May 1, 2009

I’ve got to come out and commend Sports Authority for stepping up to the challenge and helping those of us out here with mobility issues. For those of you that don’t know, my girl Marin defended her dissertation Monday. We went out and partied at the Metropolitan (Go Fed Hill go!) and my sole literally came up and off my tevas. Now, given my crutchiness, I basically need Teva’s or something with a rugged durability to prevent myself from shattering bones. I rarely wear flipflops places because I’m scared of hurting myself the way I did in the mall that year. That’s a story for another time though.

So, I was in the midst of replacing my Teva’s. I walked into the Dicks, they had nothing. I went to the Sports Authority as a last ditch effort, and low and behold…beautiful new Teva’s. I said…okay M….and I walked right up to the manager, explained how long I had been on crutches and could he help me out?

This is the 2nd time this same sports authority (For baltimore folks, it’s on Rt. 40, Catonsville) has helped me out by selling me two left shoes. I paid full price for them, and didn’t care…these shoes will last me lifetimes, and I don’t have recent additions to my right foot graveyard.

That being said: Shop early, shop often, shop online. They are a company to support and acknowledge for their help to the disabled. Thanks Sports Authority.

Bringing curiousity to the masses…

March 31, 2009

So, I wanted to parlay a story that I read in today’s addition of the Explore Howard. See here for the actual story.

So, let me take you back to 2007. Kirk Mercer was driving home from work on the Baltimore beltway, like hundreds of people in this area do everyday. Coming from Liberty Road, he interacted with Michele Bosley who was driving at 60 mph, and passed out behind the wheel of her car. They crashed and Mercer was killed. Bosley’s sodium level had dropped to dangerous levels due to an anti-epilepsy drug she was taking to prevent seizures and that’s why she passed out.

Today, Bosley was sentenced to 10 months home detention, 5 years probation, and a 10 year suspended prison sentence. However, the judge in the case said that if she ever gets behind the wheel of a car again he’ll throw her into jail faster than she can start the engine.

I was conflicted when I read this article. Why you ask? Is it a tragedy? Absolutely. Is it terrible that Mercer’s children will never get to experience their father first hand in their adult years? Yes. Could it have been prevented?

Maybe.

As much as I’m a firm believer that any disability should not prevent you from the daily goings on of your life or what you want to accomplish, I know that I was taught the day that I started having problems with my health that to a certain extent you have to know when to say when. It’s a horrific loss of independence, but you think you might have seizures, you don’t drive. But, to play devils advocate here…they didn’t go into this in the story but it made me wonder.

Was she 1 year seizure free? 5? 10? 6 months? If she was seizure free, it would lead me to assume as a patient that I was okay to drive. It’s like taking medication. If you’ve been on narcotics forever for chronic pain, driving won’t be an issue, right? Or maybe it will. That’s the thing. Medication, not unlike most things is only as good for the person after trial and error. If there wasn’t therapeutic drug monitoring, people like me wouldn’t be employable. But, here’s the thing about this.

I feel like to a certain extent I take an additional burden on by being disabled and a science PhD student. It’s as if I’m not only getting my PhD for myself and my career, but for the disabled community. That somehow we can “do it”. I know it seems silly when it comes out here written all out like that, but cmon. How many disabled professors have you seen on college campuses? Not many right? So when this article came up today, it left me conflicted for a couple reasons.

1. I feel like to a certain extent, I don’t have a disability that will put another person in bodily harm. Now, if you’re walking in front of me down the stairs and I trip and fall down the stairs….yes I’m taking you with me. However, I will admit even myself there have been times that I have been in unrelenting pain while driving and there’s not a dang on thing I can do except scream and scream because I’m in the 3rd lane and out of four you don’t want to pull over on the shoulder of the fast lane and changing lanes twice just seems like something to concentrate on other than driving and not killing anyone.

2. In the law, I wonder if there are clauses of blame without neglect. Meaning, yes this person did something. But, was it true neglect? She was taking her medication regularly. The medication was the problem. How could one judge tell one person that they are truly responsible after that?

3. If I had sat in that womans shoes, I don’t think I could ever live with myself. Now, this isn’t something like the tragedy of last summer it’s different. That was with blame.

So, I am curious. Is the woman at fault? Should she go on disability and not work? Find another way to work? She’s being a productive part of society and something tragic has happened.

Meanwhile, I must add a quick recommendation here to the ladies of Shapely Prose some resourceful women that linked the great piece I saw in Jezebel the other day about dressing your shape. Bravo ladies for good work out of Chicagoland my home away from home.

Speaking of Chicagoland, go check out Ask Men.com’s Top 29 places to live. It will give you some good insight ladies.

A sigh, a cry, and a sadness

November 4, 2008

No folks, it’s not that my work isn’t going right…it’s not that anyone is any sicker than they were yesterday.

Yes folks, today I’m going to take just a second to whine.

I had to go to the BJ’s tonight, just to get a few things, nothing special. I started thinking about how I was going to do things. See, if you’re on crutches like I am, you have to think about how you’re going to do things, make sure you don’t fall, how are you going to carry something, etc.  So, I go in fully prepared with my Harris Teeter bag (let it be said, I’ve never been in, but my mom speaks volumes!) and although one butcher helped me, I can’t tell you how awkward and weird it was.

I felt awkward. I felt helpless. There’s nothing worse to me than feeling truly helpless. I hate it.  So, I got my band aids, and my oj and headed to a self check out, and normally at grocery stores, etc…I have people that typically will come and help. I tried to get that OJ into my bag about 10 times until someone else came to help. I got it, but the staff? Was sitting there watching.

I hate that. I’m not your side show. I’m not saying that I can’t do it, although sometimes I can’t…I can, it just takes me a little time, but good god….just ask some time would ya? Please? I know sometimes there are people out there that get offended, but some of us, that are on the verge of tears…

…actually appreciate it.